HSCT Stem Cell Transplant for M.S.

Marc Coppins - Chicago

Marc's HSCT Blog

Time... There's Just not Enough Time!

Ok, on February 19, 2014, I said there would be more posted on the next day, yet here it is almost 3 weeks later, and I finally got time to sit down and post again! There just isn't enough time in the day for me to do everything I want to do. 

 

I said I would catch everyone up on what has happened in the last 4 months since the site got hacked, and I doubt I'll remember everything, but here goes...

1. I was diagnosed with Diabetes (Type 2). My A1C (Blood sugar test that covers what has been happening with my blood sugars for a three month period) was 10.5... Not good, they consider you a diabetic if your A1C is 7 or above. Basically I was told that my sugars have been running at about 170 (on average) over that three month period.

 

The doctor said that it was probably because of the steroid treatments that I got for the three years prior to the stem cell transplant, plus the steroids they give you after chemotherapy every time. I don't blame the 5 days in a row (after the chemo), that probably wouldn't have made a difference, the three years prior, getting 1000 cc's of solumedrol for three days in a row, every other month... yeah, I'm sure that got the ball rolling. Either way, diabetes can be managed very well, multiple sclerosis is very difficult to manage. I had another A1C recently, and although they want the number to be under 5 or 6 (I can't remember for sure), mine was at 6.5, and they were really impressed. I've been watching my diet, and a lot of people have been asking me if I had been losing weight. Since I don't generally weigh myself, I don't know. I don't know what my weight was before, and I don't know what it is now, but I do know that I have to get some more belts as the belts I have don't tighten up enough to hold my pants up!

 

Ok, so that's what I have been dealing with since around October... well, the physical stuff anyway!

 

Another physical thing that happened was I got sick around the beginning of the year. Upset stomach, runny nose, coughing etc. It wasn't the end of the world, but it wasn't fun either. I wanted to talk about this in case anyone is reading this and is going thru, is going to have, or has recently had HSCT... when you get sick (cold or flu anyway), because the body reacts and gives everything to fighting off the sickness, it sort of ignores the MS symptoms... basically what this means is that some of my MS symptoms came back... BIG TIME!

 

The vertigo was out of control, the vision wasn't necessarily double again, but everything was way out of focus.

 

I didn't really expect this since it was the first time I was sick in 2 1/2 years. I had to go to the bathroom (#1 for those who are interested... lol) and the bathroom was less than 10 feet away from the bed. I couldn't make it there, I tried walking... that didn't work, I fell, Barb heard this and came down right away to see if I was ok. While I was on the floor, I tried crawling, MY BALANCE WAS SO BAD I COULDN'T EVEN CRAWL... try crawling after getting off of a merry-go-round spinning really fast. When I fell (from "walking") I fell up against the wall and scrapped up my back and shoulder pretty good, which made it even more difficult to crawl. Barb was pretty upset since she has never seen me this bad before. I finally gave up and had Barb help me back onto the bed (mind you now, I still have to pee really bad!) and had her get me a bucket to pee in... it was pretty much like that for the rest of the day.

 

The next day I was still sick (but getting better... not as bad as the day before) and still couldn't walk very well. Barb went online to find out that the MS symptoms come back when you get sick... it's a small price to pay, but it still happens.

 

The bottom line, when I get sick from here on out, even a minor cold or 24 hour flu bug will basically be putting everything else on hold until I get better. The MS symptoms to go away as the body heals from the cold or flu.

 

On the positive side though I hadn't been sick with anything for 2 1/2 years!

I thought that part was pretty cool!

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